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Wednesday, July 10, 2013

The status of things

I know I haven't updated in a few days, but there really hasn't been much to tell.  Shiloh has tolerated the feedings very well and they have upped his amount to 30 cc every 3 hours.  He is getting fed 8 times a day.  His oxygen has been taken down from 4 liters to 3 liters and is at 27%.  He continues to make slow progress everyday.

Of course, this process is taking its toll on us.  I came home this afternoon and sat down "for a minute" before getting ready to come to the church for the afternoon and fell asleep.  When I did leave the house, Carrie was asleep.  The schedule itself isn't what is giving us the most problems.  Our real problem is the drive back and forth and the time in the hospital.  If you have never sat in a hospital with somebody, it is the most draining thing you can ever do.  When you compound that with him not being able to talk to us and no tv in the NICU, his room is the sleepiest place on earth.

That's not our only problem.  Shiloh isn't the only one eating 8 times a day.  Okay, we actually aren't eating 8 times a day, but it seems like it at times.  When every meal you eat is on the road, it is full of calories and salt.  You eat more calories than you think you are and you begin to retain water.  I think I have gained 10-15 pounds through all of this.  Carrie doesn't have to worry about gaining while breastfeeding, but we are quickly finding out that the quality of what she eats affects Shiloh.  If the food upsets her stomach or gives her gas, he will have the same problems.  So, we have decided to make a few changes.

First, except for some weekend nights or other special circumstances we will be coming home every night. By coming home, we are able to eat more meals at home, and we have decided that unless someone is taking us out to eat, we will only be eating food we prepare.  To accomplish this on the road, we have begun bringing a loaf of bread and peanut butter with us wherever we go along with some fruit and other snacks.  Our hope is to eat healthier for Shiloh, and to possibly be able to get back to losing weight while going through this.  This should better overall.

Our prayer requests:


  1. Shiloh's lungs continue to develop and become stronger quickly so he may be weaned off of oxygen
  2. Soon we will be able to bottle feed him and Carrie will be able to breastfeed
  3. Safety as we travel
  4. Finances for travel
  5. Diet would remain healthier and aid both Shiloh and our personal health
  6. I would be able to find creative ways to get exercise in in the midst of this.
Thank you all for your support.

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