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Thursday, July 11, 2013

Scratch that last post

It was a rough day in the NICU today.  After getting such great news last night, we went to the hospital with high hopes which were immediately shot down.  Last night's nipple feeding put Shiloh into some respiratory distress so they have upped his oxygen back to 3 liters and stopped the nipple feeding.  He was also having some periods of apnea last night and this morning.  The doctor believes it is simply a matter of trying too much too fast.  He tried to make too many advances at once and that set off a chain of events. So for now we have taken 2 steps back.

We did, however, take one step forward.  He is completely free from iv fluids.  They are keeping the pic line in as a precaution, but they have upped his tube feedings to 45 ml every 3 hours.  This means he is getting 100% of his nutrition from actual feedings.  Also, he is now being seen by the Nurse Practioner which we were told means he isn't the sickest baby anymore.

Today we found out this may be a longer road than we have been thinking.  We also found out a little bit more about the process.  There are 2 levels of NICU, and once he has been weaned off of oxygen, he will move to the 3rd floor.  On the 3rd floor NICU, there are comfort rooms where the parents can stay with the child.  Once he moves to the 3rd floor, we will be more in charge of his day to day care if we are able to be there.  So, this step is very much anticipated.  I could be wrong, but from the way the staff talks, I do not see Shiloh coming home before the end of July.

Our prayer requests tonight:


  1. Pray for his lungs to develop so he can be weaned off of oxygen
  2. Pray his periods of apnea to clear up
  3. Pray he can be moved to 3rd floor soon
  4. Pray for our finances
  5. Pray for our safety as we travel
Thank you for your prayers

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