Bedtime Story

Of all the things I imagined doing with Shiloh over the past 7 months, reading a bedtime story to him in the NICU before leaving for the night was not one of them.  It was however the best part of my day.  Not that the day was bad or that anything bad happened.  Overall, Shiloh is progressing nicely.  All of our advances have remained advances thus far.  The only caveat is his blood pressure which has been a little on the low side, but they gave him packed cells for his hematocrit levels today and his blood pressure perked up too.  So, all in all we have held our ground.  There weren't any spectacular advances to speak of today.  They did try to be more aggressive with the ventilator weaning and he tolerated it some.  At one point the vent was at 27, but they brought it back up to 29 for the night, but that is down from 32-33 yesterday.  His oxygen percentage is at 39% which is down fromaround 45% yesterday.  Small gains but gains nonetheless.  Tomorrow he will have a chest x-ray to look at his lungs.  Friday is the next heart scan.  Bilirubin is coming down so we may be out of the lights in the near future.  No huge gains, but we are making small steps, and we are thankful to God for each one.

Carrie's issues have seemed to all work themselves out.  I got my TDAP vaccine today, and it has kicked me in the teeth.  I felt so bad I wore a mask in with Shiloh tonight, but it is a necessary evil.  Tomorrow our free nights in the hospital are up and we need to get our plan in place.  I know this post is choppy, but the vaccine has me very sleepy.

The bedtime story was a time of normalcy for Carrie and I.  We actually got to do one of the things we want to do with Shiloh.  Even though the circumstances weren't perfect, it was a perfect moment, and we thank God for it.

Prayer Requests:

1. Advances to remain advances
2. His lungs would mature quickly and nicely
3. Chest x-ray will shows signs of progress
4. Heart scan will show the pda closing more
5. Jaundice will completely go away
6. Lodging for our nights we spend in Odessa

Thank you to all of your for sharing this time with us.